PARENTS EXCHANGE Cystic Fibrosis

 

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Cystic Fibrosis Foundation Information about the disease, treatment options, clinical trials, research, and public policy.

Lungs for Life Foundation Provides financial assistance to cystic fibrosis and lung transplant patients.

Cystic Fibrosis 101 Web Site of a 42 year old woman who has Cystic Fibrosis. Personal Stories, Links and Information.

Kid's Web Site Information, Games, Poems, and More for children with CP.

A-Z Directory of Cystic Fibrosis Resources Directory with listings of hospitals, charities, research, and information by topic and location.

Cystic Fibrosis FAQ "What does a diagnosis of cystic fibrosis mean to me and my child?"

Cystic Fibrosis Web Ring A Collection of Web Sites about and by individuals with Cystic Fibrosis.

Cystic-L: CF  Information and Support.

Sarah's Cystic Fibrosis Page What is Cystic Fibrosis?...Information and Links. 

Cystic Fibrosis in Children What you need to know.

Cystic Fibrosis and Nutrition By Aruna Navatha, M.A., R.D./L.D., C.D.E.

Ask NOAH Cystic Fibrosis Information, Research, Living with CF, and much more.

CysticFibrosis.com Information for families and patients including forums and a online newsletter.

Cystic Fibrosis Interactive Information Site.

Reach For The Stars Foundation Offers support and educates individuals, families, and health care facilitators who are dealing with Cystic Fibrosis.

Cystic Fibrosis Cybercampus  Funds research and organizes support groups.

Medline Article: Children with cystic fibrosis benefit from massage therapy. 

Cystic Fibrosis Information Information site containing information about CF, it's symptoms, diagnosis, treatment, coping, helpful links

Children's Memorial Hospital Cystic Fibrosis Center: Information, Research, and Links. (Chicago, IL)

Cystic Fibrosis Kids Information, Resources, and Links.

Cystic Fibrosis A free information packet you can request which includes: CFF's newsletter Commitment, CF: A Handbook for Teachers, Facts about Cystic Fibrosis Foundation ,Gene Therapy, and Progress in  Cystic Fibrosis Research.

Angela's story about living with cystic fibrosis Personal site by a girl with CF.

Madelyne & Ethan Home Page Personal Web Page for a brother and sister both with CF.

Camp Funshine Home Page A free one-week summer camp for kids, seven and up, with Cystic Fibrosis. (Houston, Texas)

I.C.F.M.A. Information and Articles.

BioSpace News: Cystic fibrosis News on new developments with Cystic Fibrosis. Easy to use format. Links.



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