PARENTS EXCHANGE Genetics 

 

LARGE TEXT BOX Tool to enlarge text.

 

Select a button to change the background color on this page.

 

Wilson Disease Information for patients and caregivers.

National Alopecia Areata Foundation Provides information about alopecia areata. Support Groups throughout the US.

The National Neurofibromatosis Foundation (NNFF) Information for people with NF, and links to other sites.

About Celiac Disease Information and Fact Sheets (National Institute of Diabetes and Digestive and Kidney Disorders).

National Organization for Albinism and Hypopigmentation Information for people with albinism, their families and those that work with them.

Foundation for Genetic Education and Counseling Genetic education for the general public and for health-care professionals. 

Albinism in Popular Culture The mythology of albinism.

Home Page of The Achromatopsia Network Information, Resources, Support, and Links.

Alport Syndrome Home Page Information, Links, and Research.

Canavan Research Foundation Information, Links, and Resources.

Teeter's Page Apert Syndrome: Personal Web Site with Links to other Apert Syndrome Home Pages and Information.

Minnow's Place CHARGE Syndrome. Information and Links.

Chromosome 22 Central Support Group for Chromosome 22 Related Disorders.

Cornelia de Lange Syndrome Information, Links, and Support.

Most Gene Directory of Genetic Services, Publication, Links, and Directory of Support Groups.

FG Syndrome FAQs

United Leukodystrophy Foundation Introduction to Leukodystrophy. Links and Resources.

Taryn's World: About Switches Personal home page for children and parents about genetic disorders, particularly mannosidosis.

National Ataxia Foundation Information and Support.

National Society of Genetic Counselors

Noonan Syndrome Support Group Support Group

Ablepharon Macrostomia Syndrome A personal site with information and links about this disease.

NORD: Adie Syndrome General discussion and further resources.

UMDS: LMBBS Information on Laurence-Moon-Bardet-Biedl Syndrome. Links.

Smart Groups: Alström Families Mailing List, Photos, Links, and Information,

Prader-Willi Syndrome Association (USA) Fact Sheet and Links.  

DNA From the Beginning An online, animated textbook which covers the basics of genetic inheritance through methods of DNA analysis. Great for those without a scientific background. (requires Flash)

International Rett Syndrome Association Information about Rett Syndrome.

Families of SMA (Spinal Muscular Atrophy) International support group and resource center for this disease, includes current research.

Hemophilia Disease management, progress and possible cures.

Hemophilia Galaxy Support and information specifically designed for people with hemophilia, their families, and health care professionals.

Hemophilia Village Information on the signs, symptoms, causes and treatments of hemophilia A and B.

Williams Syndrome Association Information, Statistics, and Links.

Tay-Sachs Disease Fact Sheet.

Fatty Oxidation Disorders Newborn Screening, Medical Information, Newsletter, and Support Resources.

Gaucher Disease Description of this disease and who gets it. A number to call for possible free testing.

Public Health Genetics Unit News and information about advances in genetics and their impact on public health policy and the prevention of disease. (UK)

Story of Robert Purkis Personal Web Site of a small boy's health problems (Leigh's Syndrome).

XXXXY Syndrome Information and Links.

Send a DNA-o-gram Free: Send a message in the language of life! Really Cool!

American Society of Genetic Disorders Informs health professionals, legislators, health policy makers, and the general public about all aspects of human genetics.

Hereditary Disease Foundation Information, news, newsletters, recommended reading, and more.

 

Return to Disability List